Whatever you call it, ME, CFX, or SEID, is still in the process of being defined. Sometimes there seem to be triggering factors, but much more often, the problem seems to occur randomly. We don’t know what vulnerabilities make people susceptible. Diagnosis is difficult. Treatment can be even harder.
The Institute of Medicine has just put out a new statement about ME/CFX/SEID.
Maybe this will help the medical community give this condition more recognition. However, most EEG neurofeedback practitioners are aware of this diagnosis and the application of neurotherapy to help with the symptoms. It may take years to thoroughly define SEID, but treatment of the nervous system manifestations is available now via neurofeedback.